One Day At A Time…Living With MS.

msawareness1

Well..things have been a little crazy around here lately when it comes to Mike’s health.  In the last few months, Mike started to get some crazy symptoms with his MS (phantom smells, numbness on left side, shakiness of the left side) and it got to the point where he had to do a steroid treatment for the third time now in September.  Rewind to the last MS attack about a year and half ago, Mike ended up switching from Copaxone to Techfidera in hopes that this wouldn’t happen again or at least slow the symptoms down, but it happened again. 😦

There is some hope though.  Mike was on the message boards for the National MS Society (in the forums) when he was preparing for his Bike MS race in Albuquerque and reading a bunch of links and articles people were sharing. There were several articles on stem cell transplants, in which they pretty much take out your old immune system and replace it with a new one using chemotherapy (and of course stem cells).  Since MS is an immune deficiency, this seems pretty hopeful.  It’s such a new study that it hasn’t been accepted across the United States yet, but some doctors have been taking on this study.  Mike examined this method a little bit more online and came across Northwestern University in Chicago, the only place in the United States attempting this treatment at this time.

msawareness2

So we applied for it.  And…we got a phone call about three weeks ago from the nurse saying that they are interested in evaluating Mike.  I feel like this is definitely a hopeful thing because I have understood people have been rejected from their first application.  I understand right now after sending them his MRI results along with all of our insurance and health information, that they should be contacting him soon to set up the appointment.

Fingers crossed. And waiting. One day at a time.

msawareness6

There are so many things that can happen right now.  Mike could get in and would be treated within the next year or two and be cured.  Mike could get in and would be treated within the next year and not be cured.  Mike could not get in and we continue to see when his symptoms reappear and so on.  Not to mention, the whole financial part of it too.  Work may be on the horizon for me and that will change the whole dynamic of things at home and with Olivia. Scary but exciting stuff.

Here are a list of websites about this procedure.  I will keep you posted on any news from Northwestern.  It is crazy to think that a year from now things could be VERY different.

hsct.nm.org

http://www.northwestern.edu/newscenter/stories/2009/01/burtms.html

http://www.stemcell-immunotherapy.org/

Thank you for all of the support!

Advertisements

Teacher Prep

 

So we were allowed a lot more time before school started to get our rooms set up.  We had more time than usual that I actually finished early and was a little ancy to get my kiddos.  Well, not too ancy. 🙂

This is my eleventh year of teaching.  Sigh.  It makes me feel old.

I didn’t really change much to my room this year.  I really like the traditional row set up because it keeps their attention, plus they can easily get into groups if they need to.  I have an advisory class this year that I am kind of excited about because they are a small group of kids I have to take care of and stalk on grades.  No pressure that I have to staff members’ kids in that class, one being my boss.

Last year, my animals were getting stolen left and right…let’s hope these little critters have a good year!

SO smug.

Hiding.

Shh….she’s sleeping….

It Starts.

 Did you ever play the Lion King game on SEGA?  Well if you never did, right at the beginning when you are logging in, Rafiki goes “It starts.”  It sounds so creepy, like your life is about to end.

Anyway, it did start today, work that is.

The dreaded 5 in the morning.  I know some of you like the sound of this and….. hiss to you! 🙂  Anyway, I was pretty proud of myself for getting my butt out of bed and actually doing a workout before I got ready.  I am especially grateful for the pictures that come with it. 🙂

The nice part is we don’t have the kids for another week, so this week is pretty much practice, and if I’m a little late…no biggie.  I get excited buying back to school clothes and stuff.  I got myself a cool lunchbox to take my 7 Day Carb Cycle diet food in.

It was cool because I was at an inservice training for the new assessment program for the district all day and they held it at the brand spanking new high school in town, Centennial High School.  It was so clean and nice.  There are so many neat things about it, like rooms that the lights turn on as soon as you enter or remote control curtains.  They totally hooked up this place.

WARNING! AWESOME PIZZA RECIPE!

Tonight for dinner I made pizzas with the Lavash bread again.  I was craving a BBQ chicken pizza.  I highly recommend using Trader Joe’s BBQ sauce.  It has some major kick.  I sautéed some chicken, onions, and peppers and topped it with cheese.  My new favorite pizza.

My sister told me that if you put the pizzas on a cooling rack, that they are crunchy throughout the whole pizza.  Usually, just the edges get way cooked and crispy, but this totally helps.  Also, it takes less time to cook.  It usually takes me about 12 minutes on 400 and tonight it only took 5 minutes.

Before I go, here are two really fun websites for teachers or parents that want to make some fun activities…go check them out.

www.wordle.net

www.prezi.com

 Any suggestions for quick morning workouts to do at home?